An update on the work of the XLP Research Trust and on the founders 4 sons, was shown on BBC South Today on Tuesday 20th September. Please visit our YouTube channel here to view the interviews.
We've made the hard decision to postpone this years planned symposium until 2023. It’s now very clear the impact of the C19 pandemic has had on medical research, with many labs across the globe having had long periods of time when they were locked down. This has been a hard
We are pleased to announce that we will be hosting the 7th biennial symposium on XLP1 and XIAP on Monday 17th October.For more information, please click here.
We're now planning the 7th bi-annual research and clinicans sympsoium on Monday 17th October, to follow the 2022 ESID meeting. We're planning this to be an inperson and virtual event - more details to follow!
The 6th biennial XLP Symposium happened on Monday 19th October and despite being 'virtual' was a huge success. To look at the agenda and a link through to some of the presentation of YouTube please click here.
We are grateful for the following organisations who have published great advice for families with similar conditions to XLP, and for those who have been through stem cell transplants. Please ensure that you are in touch with your own medical team if you have any concerns. They should always be