News

XLP Symposium 2020 - Its a wrap!  Posted October 22, 2020

The 6th biennial XLP Symposium happened on Monday 19th October and despite being 'virtual' was a huge success. To look at the agenda and a link through to some of the presentation of YouTube please click here. 

XLP (virtual) Symposium 2020 - agenda just published Click below.  Posted August 20, 2020

COVID-19 Latest update  Posted June 03, 2020

We are grateful for the following organisations who have published great advice for families with similar conditions to XLP, and for those who have been through stem cell transplants.  Please ensure that you are in touch with your own medical team if you have any concerns. They should always be

COVID-19 Update  Posted March 12, 2020

Events are moving fast with the global spread of Coronavirus so it's essential that if you have any concerns you should contact your local doctors. We have found that the following web sites have been very helpful and are being updated regularly)Immune Deficiency Foundation - Helpful Resources for COVID-19 Anthony Nolan

COVID-19  Posted March 10, 2020

Events are moving fast with the global spread of Coronavirus so it's essential that if you have any concerns you should contact your local doctors. We have found that the following web sites have been very helpful (and are being updated regularly) Immune Deficiency Foundation - Helpful Resources for COVID-1

The 6th XLP Symposium.  Posted March 02, 2020

Please to confirm the date for this is Monday 19th October, directly after the ESID conference. We now have a call for papers. Please visit our ‘Research’ page and then click ‘Symposiums’

XLP Symposium 2020. Please reserve Monday 19th October 2020 for the 6th bi-annual XLP and XIAP symposium - likely to be in central London again. This 1 day event will happen directly after the ESID meeting in Birmingham.  Posted October 14, 2019

Pete runs London for XLP  Posted January 02, 2019

Our friend Pete Bond is embarking on running the London Marathon this April for XLP. Check out his blog here.