Pete runs London for XLP  Posted January 02, 2019

Our friend Pete Bond is embarking on running the London Marathon this April for XLP. Check out his blog here.

New patient leaflets on XLP1 and XIAP now available  Posted December 13, 2018

Working with our friends at PIA UK, we're pleased to announce the availability of new leaflets for both XLP1 and XIAP. Ready for download. 

Latest XLP Symposium Agenda Published.  Posted October 05, 2018

The latest agenda for our forthcoming symposium has just been published. Please visit our medical research pages for details.

Draft Agenda published for the XLP Research Trust Sympsoium 2018  Posted August 20, 2018

Delighted to announce that we have published a draft agenda for this forthcoming symposium. Please click here for info.

The XLP Research Trust 2018 Symposium Update.  Posted July 04, 2018

We are pleased to confirm that we have have 12 speakers for our XLP1 and XIAP symposium in October. Please check out the draft agenda.

Launch - XLP Research Trust Symposium 2018  Posted February 27, 2018

This symposium for researchers and clinicians will be on the 29th October in Central London. This will be our 5th bi-annual symposium and a key meeting for all working on XLP1 and XIAP. For more details click here.

Website Upgrade  Posted September 04, 2017

We're pleased to have our new web site up and running. It was designed and developed by Will Law. Let us know what you think!