The Generation Study  Posted October 18, 2023

Exciting news. Both XLP1 and XIAP have been included in the forthcoming 'Generation Study' here in the England & Wales. The Generation Study is an NHS-embedded research study which will explore the benefits, challenges and practicalities of sequencing and analysing newborns’ genomes. The study will sequence and analyse the genomes

XLP Research Trust on the BBC  Posted September 27, 2022

An update on the work of the XLP Research Trust and on the founders 4 sons, was shown on BBC South Today on Tuesday 20th September. Please visit our YouTube channel here to view the interviews.

XLP Symposium 2022 update.  Posted September 13, 2022

We've made the hard decision to postpone this years planned symposium until 2023. It’s now very clear the impact of the C19 pandemic has had on medical research, with many labs across the globe having had long periods of time when they were locked down. This has been a hard

Update on the XLP Sympsoium 2022. We have made the decision to switch this years symposium to a virtual event only. For more information please check out this page.  Posted August 09, 2022


Call for papers for the XLP Symposium 2022  Posted March 17, 2022

We are pleased to announce that we will be hosting the 7th biennial symposium on XLP1 and XIAP on Monday 17th October.For more information, please click here.

XLP Symposium - mark your calenders - 17th October 2022  Posted March 16, 2022

We're now planning the 7th bi-annual research and clinicans sympsoium on Monday 17th October, to follow the 2022 ESID meeting. We're planning this to be an inperson and virtual event - more details to follow!

XLP Symposium 2020 - Its a wrap!  Posted October 22, 2020

The 6th biennial XLP Symposium happened on Monday 19th October and despite being 'virtual' was a huge success. To look at the agenda and a link through to some of the presentation of YouTube please click here. 

XLP (virtual) Symposium 2020 - agenda just published Click below.  Posted August 20, 2020