Exciting news. Both XLP1 and XIAP have been included in the forthcoming 'Generation Study' here in the England & Wales. The Generation Study is an NHS-embedded research study which will explore the benefits, challenges and practicalities of sequencing and analysing newborns’ genomes. The study will sequence and analyse the genomes
An update on the work of the XLP Research Trust and on the founders 4 sons, was shown on BBC South Today on Tuesday 20th September. Please visit our YouTube channel here to view the interviews.
We've made the hard decision to postpone this years planned symposium until 2023. It’s now very clear the impact of the C19 pandemic has had on medical research, with many labs across the globe having had long periods of time when they were locked down. This has been a hard
We are pleased to announce that we will be hosting the 7th biennial symposium on XLP1 and XIAP on Monday 17th October.For more information, please click here.
We're now planning the 7th bi-annual research and clinicans sympsoium on Monday 17th October, to follow the 2022 ESID meeting. We're planning this to be an inperson and virtual event - more details to follow!
The 6th biennial XLP Symposium happened on Monday 19th October and despite being 'virtual' was a huge success. To look at the agenda and a link through to some of the presentation of YouTube please click here.