Other Stories
XLP Stories

Other Stories


Johnathan McIntyre

Johnathan McIntyre   25 Jan 2004

My name is Tabatha Marshall from Hinesville, Georgia. I am the mother of a 15-year-old XLP child. He is the only living one in my family that has the disease. 4 other little guys predecease him. I would like to…

Herbert Family

Herbert Family   26 Jan 2002

Bursting with pride in our bubble boy Brave Alex Herbert's first public appearance since undergoing a bone marrow transplant was to help raise awareness of the hospital and medical staff who saved his life. The four-year-old spent eight weeks in…

The Hinton Family

The Hinton Family   27 Jul 2001

A little boy's major miracle To look at Grant Hinton is to see a beautiful boy who survived to be in this world when his family against all odds found the answers needed to save him. He is the son…

La Rue family

La Rue family   13 Apr 2001

UCLA physicians announced today that three young boys - each born with a defective immune system like the "boy in the bubble" - underwent umbilical-cord blood transplants from unrelated donors, and two years later, are seemingly cured of their immunodeficiencies. …


A list of other XLP related stories from around the web:

Henry Bancroft's story

Henry Bancroft's story

Henry Bancroft, who has spent the last 13 weeks in hospital, suffers from XIAP, a rare condition that means he spends much of his life in hospital and has had a bone marrow transplant.
http://www.watfordobserver.co.uk/news/16396926.family-appeal-to-get-the-perf/

Landen Smith's story

Landen Smith's story

After receiving a trial medication that not only works, but lets him lead an ordinary life, 12-year-old Landen Smith may see it go away.
http://www.oneidadispatch.com/general-news/20180618/sherrill-mother-fighting-for-sons-life

Jacob Martinez's story

Jacob Martinez's story

For Jacob Martinez, blood and platelet transfusions are part of daily life. So is confinement to a tiny room sealed off from the contaminates of the outside world.
http://www.pasadenastarnews.com/ci_11367027

Cancer survivor's surprise is 'beyond belief'

Cancer survivor's surprise is 'beyond belief'

INDEPENDENCE - Earning a black belt in taekwondo didn't make Adam Steele a warrior.
http://www.kenton.k12.ky.us/districtNewsArticle.aspx?artID=1456

Joe Spitzzeri's story

Joe Spitzzeri's story

Joe Spitzzeri, Jr. walks to the mound to throw out the first pitch Thursday before Kaneland's Western Sun Conference game against Sycamore. Spitzzeri is being treated for a rare genetic disorder.
http://www.dailyherald.com/story/?id=187947

Church appeal for sick Muslim boy

Church appeal for sick Muslim boy

A church is appealing for mixed-race bone marrow donors on behalf of a young Muslim boy diagnosed with a rare and life-threatening genetic disorder.
http://news.bbc.co.uk/1/hi/england/3534970.stm

Jordan DeBalli

Jordan DeBalli

Annual blood donation session to honour the memory of Jordan DeBalli.
http://articles.dailyamerican.com/2008-05-10/news/26320722_1_blood-drive-blood-donors-platelets