Medical Research


The XLP Research Trust aims to hold a research symposium every two years. The first meeting was in April 2010 and we have just completed our 2020 symposium which because of the COVID-19 pandemic was virtual. .

The symposiums look to bring together medical researchers and clinicians from across the world to present their latest research findings on XLP1 and XIAP and to give time to network together. We're always had great support from the team at UCL Great Ormond Street Institute of Child Health and the Jeffrey Modell Foundation WIN Program in helping make these important events come together. 

We've found these events to be a brilliant way of building an informal research community and helping to learn from each other.

We had planned to host our 7th symposium in 2022, but we have made the hard decision to postpone this until 2024. It became clear that the impact of the C19 pandemic has affected all walks of life, including medical research. For large periods of the last few years, research labs haven’t been able to function effectively, meaning that we received a small number of papers that meant the symposium just wasn’t viable. We will at the start of 2024 be emailing our list of researchers involved in XLP1 and XIAP research to see if they may have some new findings to present later in the year. If you have a potential paper please do let us know.

Please check back for more updates.

Xlp Symposium 2020 Virtual

XLP Symposium 2020

The 6th XLP Symposium was held on Monday 19th October 2020 . Due to COVID-19 pandemic we decided to make this a virtual event.

The agenda can be downloaded from here. 

Download : 2020 Agenda

Some of the presenters have given us permission to share their presentations on line. Please visit our new YouTube site to see these excellent presentations. 


Xlp Logo 2018 3

XLP Symposium 2018

The 5th XLP symposium, was held on the 29th October 2018 in Central London.

You can download a copy of the agenda here.

Download: 2018 Symposium Agenda

We are grateful for support from the Jeffrey Modell Foundation and SAS UK in helping put this event on. 

Xlp Was 2016 Logo

XLP WAS Symposium 2016

The 4th bi-annual XLP symposium, our 2nd also covering Wiskott Aldrich Syndrome, was held on the 26th September 2016 at the Institute of Child Health in London.

You can download a copy of the agenda here.

Download: 2016 Symposium Agenda

Xlp Was Logo 2014

XLP WAS Symposium 2014

In November 2014 we hosted a joint research symposium with two Wiskott Aldrich Syndrome charities in London.

You can download a copy of the agenda here.

Download: 2014 Symposium Agenda

Symposium 2012

XLP Symposium 2012

The second XLP Symposium was held on Monday 8th October 2012 at the Wellcome Collection Conference Centre in Central London.

You can download a copy of the agenda here.

Download: 2012 Symposium Agenda

Colour 1

XLP Symposium 2010

The world’s first symposium on XLP was held in London in February 2010. We would like to express our thanks to the Institute of Child Health and the PiA for there support in making the event possible.

You can download a copy of the agenda from here.

Download: 2010 Symposium Agenda

Videos of the presentations can be viewed here:

2010 Symposium Videos