The XLP Research Trust are members of the Fundraising Standards
Board self-regulatory scheme. The Fundraising Standards Board works to
ensure that organisations raising money for charity from the public do
so honestly and properly. As members of the scheme, we follow the
Institute of Fundraising’s Codes of Fundraising Practice and comply
with the key principles embodied in the Codes and in this Promise
We do all we can to ensure that fundraisers, volunteers and
fundraising contractors working with us to raise funds comply with
the Codes and with this Promise
We comply with the law including those that apply to data
protection, health and safety and the environment
We are honest and open
We tell the truth and do not exaggerate
We do what we say we are going to do
We answer all reasonable questions about our fundraising
activities and costs. Please contact us, visit our website or see
our Annual Report if you require further details
We are clear
We are clear about who we are, what we do and how your gift is
used
Where we have a promotional agreement with a commercial company,
we make clear how much of the purchase price we receive
We give a clear explanation of how you can make a gift and amend
a regular commitment
We are respectful
We respect the rights, dignities and privacy of our supporters
and beneficiaries
We will not put undue pressure on you to make a gift and if you
do not want to give or wish to cease giving, we will respect your
decision
If you tell us that you don’t want us to contact you in a
particular way we will not do so
We are fair and reasonable
We take care not to use any images or words that cause
unjustifiable distress or offence
We take care not to cause unreasonable nuisance or disruption
We are accountable
If you are unhappy with anything we’ve done whilst
fundraising, you can contact us to make a complaint
We have a complaints procedure, a copy of which is available on
request. If we cannot resolve your complaint, we accept the
authority of the Fundraising Standards Board to make a final
adjudication
Cameron Twitty
Cameron Twitty was diagnosis was a mystery
until just before Christmas 2006 when, aged 12, doctors determined that he had XLP