Home | History | Fund Raising | Events | Volunteers | Medical Research | Media | XLP Stories | Contact us | Useful Links | Literature
      



About XLP

Information for families. Fact sheet reproduced with permission from Great Ormond Street Hospital for Children NHS Trust.

XLP Family Route Map. Providing key information on XLP for affected families. UK version.

XLP General Guide Genetics Providing a general guide to genetics

Epstein-Barr Virus

The Genetics of XLP

Information on XLP2

Having Children

Immunoglobulin Replacement

Gene Therapy and XLP

Preparing for BMT

 

XLP Research Trust Newsletters

Winter 2009

Summer 2009

Summer 2008

Winter 2008

Summer 2007

Winter 2007

Summer 2006

XLP Research Trust Report and Financial Statement

2007-2008

2006-2007

2005-2006

Focus on:
Cameron Twitty

Cameron Twitty

The following stories are about Cameron Twitty his diagnosis was a mystery until just before Christmas 2006 when, aged 12, doctors determined that...

more

Make a donation XLP Family Forum
© 2010 The XLP Research Trust  |  Registered Charity No: 1111075
Important Note: The information contained in this site is intended only as a guideline, not as a substitute for medical advice. Always consult your doctor first.