The following are some useful links for further information or research.

Becoming a bone marrow donor

If you are eligible please become a potential bone marrow donor. This is currently the only cure for XLP and many other diseases.

	www.anthonynolan.com
	www.marrow.org
	www.zkrd.de
	www.fgm.fr
	www.ibmdr.galliera.it
	www.jmdp.or.jp
	www.bloodservices.ca
	www.abmdr.org.au
Rest of the world	www.bmdw.org/index.php?id=addresses

Correlagen Diagnostics

Correlagen Diagnostics is a CLIA-certified laboratory that provides genetic testing services for primary immunodeficiencies, including information on genetic diseases and the benefits of genetic testing.

Primary Immunodefficiency Association (PIA) - www.pia.org.uk
The PiA is an organisation which exists to support people who have to live with Primary Immunodeficiencies in the UK. Its work involves liaising with clinicians and immunologists, funding relevant research and campaigning for the rights of its members.

Immune Deficiency Foundation (IDF) - www.primaryimmune.org/idf.htm
The Immune Deficiency Foundation (IDF) is the USA non-profit health organization dedicated to improving the diagnosis and treatment of primary immune deficiency diseases through research and education.

Genetic Interest Group (GIG) - www.gig.org.uk
The Genetic Interest Group (GIG) is a national UK alliance of patient organisations with a membership of over 130 charities which support children, families and individuals affected by genetic disorders.

The Genetics Society - www.genetics.org.uk
The Genetics Society is a `learned society' whose membership of over 2,000 consists of most of the UK's active professional geneticists, including teachers, researchers and students. Industry and publishing are also well represented in our membership.

National Primary Immunodeficiency ResourceCenter - www.info4pi.org
The US based National Primary Immunodeficiency ResourceCenter is a mine of useful information on all Primary Immunodeficiencies